Putting the Pieces Together
Resources
To help you learn more about TBI and support services for families, this page lists resources in the following categories:
- Brain Injury Associations
- Connecting with Others
- Educational, Rehabilitation, Employment, Training & Vocational Resources
- Recovery and Coping Resources
- Local Organizations and Resources
- State Organizations
- National Organizations
- Transportation Resources
- General Disability Information Sites
- Links to General Brain/Neurological Info Sites
- Websites for TBI Survivors, Families & Caregivers
- Financial Resources
When possible, contact information and a link to a related web site are included. We do not recommend or endorse any particular web sites or any of the opinions you may find expressed on these pages. Nor do we vouch for the accuracy of any information you may find on the Web. The sites listed here may be of interest to brain injury survivors, family members, and caregivers. Any information you find on the Web should not be used for medical or psychological diagnosis, or to change any individual's health care treatment.
Brain Injury Associations
The Brain Injury Association of America
The International Brain Injury Association
http://www.internationalbrain.org
Ohio Brain Injury Association
1335 Dublin Rd., Suite 217D
Columbus, OH 43215-7103
1-800-686-9563 (in Ohio)
613-481-7100
http://www.biaoh.org
Pediatric Brain Injury Association
3333 Burnet Avenue
Cincinnati, OH 45229-3039
513-636-7480
Connecting with Others
Brain Injury Chatroom
http://www.braininjurychat.org
The Brain Injury Ring
http://f.webring.com/t/Brain-Injury-Ring
National Database of Educational Resources on Traumatic Brain Injury
http://www.braininjuryresearch.org
Find bibliographic and order information for videotapes, audiotapes, and unpublished printed materials on TBI. Some printed materials are available as downloadable files. This database is a collaborative effort between the National Institute on Disability and Rehabilitation Research, United States Department of Education and the Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau.
Ohio Brain Injury Association Community Support Network
4210 Dana St.
Cincinnati, OH 45223
513-542-2704
http://www.biaoh.org/resources.html
The Perspectives Network: Survive with Pride
The TBI Chatroom
Educational, Rehabilitation, Employment, Training & Vocational Resources
National Educational Resources
Brain Injury Partners
http://free.braininjurypartners.com/
Dr. Ann Glang (Oregon) has developed an excellent FREE interactive website for parents whose kids have sustained a TBI. The focus of the website is “how to deal with the school,” but it also has other features (i.e. family stress management, etc.).
The Education Law Center
60 Park Place, Suite 300
Newark, New Jersey 07102
Toll-free: 1-973-624-4618
http://www.edlawcenter.org/
National Association of Special Education Teachers
http://www.naset.org/traumaticbraininj2.0.html#c9629
National Center for Learning Disabilities
381 Park Avenue South Suite 1401
New York, NY 10016
Phone: 212-545-7510
Fax: 212-545-9665
Toll-free: 1-888-575-7373
http://ncld.org
National Rehabilitation Information Center
8455 Colesville Rd., Suite 935
Silver Spring, MD 20910-3319
1-800-346-2742
http://www.naric.com
National Transition Alliance for Youth with Disabilties (NTA)
Transition Research Institute
University of Illinois
113 Children's Research Center
51 Gerty Dr.
Champaign, IL 61820
217-333-2325
http://www.ed.uiuc.edu/sped/tri/institute.html
Office of Special Education and Rehabilitative Services (OSERS)
U.S. Department of Education
400 Maryland Avenue SW
Washington, DC 20202-0498
1-800-USA-LEARN
http://www.ed.gov/about/offices/list/osers/index.html?src=mr
Parent Advocacy Coalition for Educational Rights (PACER)
4826 Chicago Avenue South
Minneapolis, MN 55417-1098
952-838-9000
http://www.pacer.org
Rehabilitation Services Administration
Dr. Douglas Burleigh
RSA Regional Commisioner
Department of Education 10220 N. Executive Hills Blvd.
Kansas City, MO 64153-1367
816-880-4107
http://www.onestops.info/article.php?article_id=74&subcat_id=32
State by State Guide to TBI Resources for Parents
http://olrs.ohio.gov/asp/pub_TBIResourceGuideTXT.asp
Great Schools / Schwab Learning
This site is geared toward parents of children with learning difficulties. It offers tips for managing your child’s learning disorder, his or her school environment, and also has several resources for connecting with other parents across the country.
United States Department of Education: A Guide to the Individualized Education Program
http://www.ed.gov/parents/needs/speced/iepguide/index.html
This site provides a Microsoft Word document which explains the Individualized Education Program (IEP,) including the writing process, placement process, and implementation process.
Virtual Counseling Center
This site, run by Arizona State University, offers free information regarding career planning and life skills.
Wrightslaw
Information about special education law, education law, and advocacy for children with disabilities.
LEARNet
LEARNet is a problem-solving system designed to help you identify useful procedures for helping students with brain injury in school and at home.
Ohio Educational Resources: General
Ohio Department of Health Bureau for Children with Medical Handicaps
Columbus, OH 43216-0118
Phone: 614-466-1547
Fax: 614-728-3616
www.odh.ohio.gov
Ohio Department of Education
25 South Front Street
Columbus, Ohio 43215-41
614-466-3641
http://www.ode.state.oh.us
Legal Aid
Butler, Hamilton, Clermont, Brown, Warren, Clinton, and Highland Counties:
1-800-582-2682
All other Ohio counties:
1-800-589-5888
Special Education Resource Center
1301 Bonnell Ave., 3rd floor
Cincinnati, OH 45215
513-563-0045
Bill Bogdan (ext. 12)
bogdan__B@hcesc.org
Ohio Educational Resources: Cincinnati/Hamilton County
Cincinnati Public Schools
Office: 513-363-0178
Email Address: igoecar@cpsboe.k12.oh.us
Legal Aide of Cincinnati
513-241-9400
Can work with families on educational rights.
Memorial Inc.
(Formerly Child Advocacy Center)
Cathy Heizman, Director
Cincinnati, OH
513-621-3032, ext. 2118
Works with families in Hamilton County.
Mount Healthy City School District
Office: 513-522-1612
Fax: 513-521-0796
Email Address: rkahsar@mthcs.org
Oak Hills Local School District
Office: 513-598-2957
Fax: 513-598-2947
Email Address: dunford_j@oakhills.hccanet.org
Office for Exceptional Children
Columbus, OH 43215-4183
614-752-1378
Toll free: 1-877-644-6338
Parent Mentors of Ohio
http://thelinkto.com/parentmentor/
Princeton City Schools
Office: 513-552-8244
Fax: 513-552-8224
Email Address: (Home) pets@cinci.rr.com
Rehabilitation Services Commission for Cincinnati Residents:
Bureau of Disability Determination
513-791-0600
Bureau of Services for the Visually Impaired
513-853-3223
Bureau of Vocational Rehabilitation
513-852-3260
Sharon Sellet
Education Advocate and Consultant
513-941-0975
Southwestern Ohio Special Education Regional Resource Center (SERRC)
Cincinnati, Oh 45215
513-563-0045
Serving parents and educators in the Central Ohio Region
University of Cincinnati Raymond Walters College
Office of Disability Services
9555 Plainfield Rd.
Cincinnati, OH 45236
513-792-8625
http://www.uc.edu/sas/disability
Ohio Educational Resources: Outside Cincinnati
Ohio Coalition for the Education of Children with Disabilities
Marion, OH 43302-3741
Phone: 740-382-5452 or 800-374-2806
Email: ocecd@gte.net
Web: www.ocecd.org
Parent Mentors of Ohio
Butler County
Office: 513-644-1212 x 22083
Fax: 513-644-1179
terri.doerr@lakotaonline.com
Cell Phone: 513-383-8821
Middletown City School District
Office: 513-420-4620
Fax: 513-420-4632
lmcdowell@middletowncityschools.com
Kentucky Educational Resources
The Arc of Kentucky
Frankfort, KY 40601
502-875-5225; 800-281-1272
Email: arcofky@aol.com
Provides resources for healthcare and school issues.
Children's Law Center
Covington, KY 41011
859-431-3313
Email: childrenslaw@fuse.net
Web: http://www.childrenslawky.org
Provides free legal services for children with educational disabilities.
Kentucky Department for the Blind
859-371-3380
Kentucky Department of Vocational Rehabilitation
859-292-3042 (Newport)
859-371-9450 (Florence)
859-292-6513 (Covington)
Kentucky Education Rights Center, Inc.
Versailles, Kentucky 40383
859-879-0411; Fax: 859-879-0412
Web: www.edrights.com
Work with families of children (ages 3 - 21 years) with physical and mental disabilities in their relations to the public school systems.
Kentucky Partnership for Families and Children
Frankfort, KY 40601
502-695-5366; 800-369-0533
Web: www.kypartnership.org
Call our Parent Resource phone line to get information about specific disabilities, support groups, and/or parent contacts in your area.
Kentucky Special Parent Involvement Network (KY-SPIN)
Louisville, KY 40272
502-937-6894; 800-525-7746
Web: www.kyspin.com
SPIN provides training, information and support to people with disabilities, their parents and families.
Kentucky State Department of Education
Department of Special Education Services
Frankfort, KY 40601
502-564-3421
Toll-free: 800-533-5372
Restrictions: KY residents only
Web: http://www.kde.state.ky.us
Northern Kentucky Coop for Educational Services (NKCES)
Cold Spring KY 41076
859-441-4225, ext. 222
Fax: 859-442-4593
Enhances the educational opportunities and outcomes of students with specialized services.
Office of Vocational Rehabilitation
7410 U.S. 42, Suite 124
Florence, KY 41042
859-371-9450
OR
636 Madison Ave., Suite 504
Covington, KY 41011
859-292-6513
http://ovr.ky.gov/index.htm
Point by Point Advocacy
Free Educational Advocacy
859-491-9191
Works with families in the Kenton, Campbell, Boone counties of Northern Kentucky.
Sharon Sellet
Education Advocate and Consultant
513-941-0975
Indiana Educational Resources
Division of Exceptional Learners
Indiana Department of Education
Room 229 State House
151 West Ohio Street
Indianapolis, IN 46204-2798
Phone (V/TTY): 317-232-0570
Toll Free: 877-851-4106
Fax: 317-232-0589
http://ideanet.doe.state.in.us/exceptional/
Indiana Parent Information Network
1-800-964-IPIN (4746)
Fax:317-251-7488
Web: www.IPIN.org
IN*SOURCE Home Office
Indiana Resource Center for Families with Special Needs
1703 South Ironwood Drive
South Bend, IN 46613
Phone (V/TT): 219-234-7101
Toll Free: 800-332-4433
Fax: 219-234-7279
Web Site: www.insource.org
Ripley-Ohio-Dearborn Special Education Cooperative
323 N. Meridian Street
P.O. Box 238
Sunman, Indiana 47041
Phone: 812-623-2212
Fax: 812-623-2315
Email: rodse@nalu.net
Recovery and Coping Resources
Betty Clooney Foundation
Resources on helping TBI survivors through their recover process.
Brain Injury Partners
http://free.braininjurypartners.com/
Dr. Ann Glang ( Oregon) has developed an excellent FREE interactive website for parents whose kids have sustained a TBI. The focus of the website is “how to deal with the school,” but it also has other features (i.e. family stress management, etc.).
Brain Injury Resource Foundation
http://www.birf.info/home/links/caregivers.html
Provides categories of links to numerous websites relevant to brain injury. Examples of categories include: Caregivers, Educational and Vocational, Pediatric Resources, Rehabilitation, and more.
Center for Disease Control TBI Fact Sheet
http://www.cdc.gov/ncipc/tbi/TBI.htm
Center for Disease Control - Fact for Physicians about Mild TBI
http://www.cdc.gov/ncipc/pub-res/tbi_toolkit/physicians/mtbi/mtbi.pdf
The Dana Alliance for Brain Injury Initiatives
This site provides extensive information about the brain and its disorders, and provides access to a variety of free publications (see the "Select Publication" drop-down menu). Click on "Brain Kids Online" to access activities for younger children, puzzles, and lesson plan suggestions.
Federal TBI Program
http://www.mchb.hrsa.gov/programs/tbi.htm
Webpage for the Health Resources and Services Administration's (HRSA) Maternal and Child Health Bureau (MCHB) Federal Traumatic Brain Injury. This page provides a brief overview of the Federal TBI Program, including descriptions of its goals, grant categories, TBI Technical Assistance Center at the National Association of State Head Injury Administrators, collaborators, systems change efforts, and one TBI publication available through the HRSA Information Center.
Head Injury
A place where visitors can get information, join a discussion group, build advocacy skills and self-care skills.
KidSource Parenting Newsletter on TBI
http://www.kidsource.com/NICHCY/brain.html
Lash & Associates Publishing
This site provides information and materials written by and for teachers, therapists, and parents. Monthly specials are featured, offering discounts on selected publications. Click on "Resource Links" for an extensive list of informative websites.
National Academy of Neuropsychology
This site provides a variety of TBI education modules, primarily involving Mild TBI (MTBI) and concussion, including MTBI terminology, neuropsychological testing considerations in MTBI, diagnostic challenges in MTBI, and sports and MTBI.
National Resource Center for TBI
Visit this site for information on current TBI research, prevention, and related information.
NIH Resources about Brain Injury
http://health.nih.gov/result.asp/300
TBI Information from the Mayo Clinic
http://www.mayoclinic.com/health/traumatic-brain-injury/DS00552
TBI Recovery Center
http://www.tbirecoverycenter.org/index.htm
TBI Resource Center
http://www.braininjuryresources.org/
TBI Survival Guide
Traumatic Brain Injury.com
http://www.traumaticbraininjury.com/
The Traumatic Brain Injury National Data Center (TBINDC)
The TBIMS program seeks to improve the lives of persons who experience traumatic brain injury, their families and their communities by creating and disseminating new knowledge about the course, treatment and outcomes relating to their condition.
Traumatic Brain Injury Resource Guide
The "News and Education" section offers current TBI news, the "Research" menu provides links to information about brain injury and MTBI (mild traumatic brain injury/concussion), and a glossary and pharmacology guide are included in "Tools" to help in understanding medical or rehabilitation records.
Local Organizations and Resources
Center for Independent Living Options
Cincinnati, OH
513-241-2600
Child Advocacy Center
513-621-3032
http://www.cincinnatichildrens.org/svc/alpha/r/rehab/links.htm
Cincinnati Association for the Blind
513-221-8558
http://www.cincyblind.org
Cincinnati Recreation Commission
Therapeutic Recreation Division
Two Centennial Plaza
805 Central Ave.
Cincinnati, OH 45202
513-352-4028
http://www.cincinnati-oh.gov/crc/pages/-5721-/
Easter Seal Society of Southwestern Ohio
231 Clark Rd.
Reading, OH
513-821-9890
National organization with contacts for local agencies for assistance and resources. Receives state and federal funds to provide vocational rehabilitation services.
Easter Seals Center Northern Kentucky
31 Spiral Dr.
Florence, KY
859-525-1128
Hamilton County Board of MRDD
Division of Community Resources
4370 Malsbary Rd., Suite 200
Cincinniati, OH 45242
513-794-3308
http://www.hamiltonmrdd.org/
Hamilton County Department of Human Services (Financial Information)
513-632-6115
http://www.hcjfs.hamilton-co.org/Buttons/about_us.htm
Inclusion Network
Cincinnati, OH
513-345-1330
http://inclusion.org
Jack H. Rubinstein Libraries
Research, Parent and Toy Library
Pavilion Bdg., 4th Floor, Rm. 4-76 Cincinnati Children's Hospital Medical Center
Cincinnati, OH 45229-3039
513-636-4626
http://www.cincinnatichildrens.org/visit/facilities/libraries/
Legal Aid Society
901 Elm St.
Cincinnati, OH
513-241-9400 (Hamilton County)
513-732-2422 (Clermont County)
1-800-582-2682 (Butler County)
http://www.lascinti.org/
Miracle Dance Theatre
4927 Glenway Ave.
Cincinnati, OH 45243
513-921-0700
http://www.miracledance.com
Respite Care
Hamilton and Clermont County, OH
513-421-0209
Siegel & Agins Co., LPA
Law firm specializing in Special Education.
Stepping Stones Center for the Handicapped
5650 Given Rd.
Cincinnati, OH 45243
513-831-4660
http://www.steppingstonescenter.org/index.htm
State Organizations
Advocates for Ohioans with Disabilities (ADD)
1767 Longwood Dr.
Cleveland, OH 44124
216-398-5501
Disabilities Coalition of Northern Kentucky
16 Pike
Covington, KY
859-431-7668
http://www.dcnky.org/
Disabled Consumer Network
"We the People Newsletter"
PO Box 292379
Kettering, OH 45429
President - Steve Heller
937-225-3194
Ohio Legal Rights Service
8 East Long St. 5th Floor
Columbus, OH 43215
1-800-282-9181
614-466-7264
http://olrs.ohio.gov/ASP/HomePage.asp
Ohio Legal Rights Service
Ohio Parenting Negotiation Skills for IEPs
http://olrs.ohio.gov/Other/NegotiationSkills.pdf
Ohio Statewide Independent Living Council
259 Livingston Ave.
Columbus, OH 43215-5790
1-800-566-7788
http://www.ohiosilc.org
National Organizations
American Association of People with Disabilities
4401 Connecticut
Washington, DC 20008
1-800-840-8844
http://www.aapd-dc.org
American Chronic Pain Association
PO Box 850
Rocklin, CA 95677
1-916-632-0922
http://www.theacpa.org
American Speech Language Hearing Association
http://www.asha.org/public/speech/disorders/Traumatic-Brain-Injury.htm
Consortium for Citizens with Disabilities
1730 K Street NW, Suite 1212
Washington, DC 20006
202-785-3388
http://www.c-c-d.org
Equal Opportunity Coalition
1 Congress St.
Boston, MA 02114
1-800-669-4000
http://www.usdoj.gov/crt/ada
Family Resource Center on Disabilities
20 East Jackson Blvd.
Room 900
Chicago, IL 60604
312-939-3513
http://users.ameritech.net/frcdptiil/index.html
Federation for Children with Special Needs
1135 Tremont St., Suite 420
Boston, MA 02120
1-800-331-0688
http://www.fcsn.org
Great Lakes Disability and Business Technical Assistance Center
1640 West Roosevelt Rd.
Chicago, IL 60608
312-413-1407
http://www.adagreatlakes.org/
National Organization on Disability
910 16th Street NW, Suite 600
Washington, DC 20006
1-202-293-5960
http://www.nod.org
National Spinal Cord Injury Association
8300 Colesville Rd., Suite 551
Silver Springs, MD 20910
1-800-962-9629
http://www.spinalcord.org
Social Security Administration (SSI)
1-800-772-1213
http://www.ssa.gov
Transportation Resources
Bethesda Driving Program
Cincinnati, OH
513-985-6757
Good Samaritan Driving Program
Cincinnati, OH
513-872-2481
Metro Bus System
Access Specialized Transportation
Application Process Required Cincinnati, OH
513-632-7590
http://www.sorta.com/
TANK Bus System - Northern Kentucky
859-578-6949
http://www.tankbus.org/
Accessible transportation.
General Disability Information Sites
Assistive Technology in the Individual Education Plan
This document outlines considerations in the selection and implementation of assistive technology (AT) within the Individual Education Plan (IEP), the roles of IEP team members, sample IEP goals, and the use of AT in instruction of students with mild disabilities.
Assistive Technology Training Online
CDC TBI Publications
http://www.cdc.gov/ncipc/tbi/TBI_Publications.htm
Produced by the State University of New York at Buffalo, this site provides assistive technology basics, tutorials, and resources.
Centers for Disease Control and Prevention (CDC)
The CDC's site provides information on the epidemiology of TBI, as well as a link to view or order their publication "Facts about Concussion and Brain Injury," a summary of mild brain injury with sections relevant to concussion in children. Click on Search and type in traumatic brain injury to link to this information.
Council for Exceptional Children
CEC advocates for appropriate governmental policies, sets professional standards, provides continual professional development, advocates for newly and historically underserved individuals with exceptionalities, and helps professionals obtain conditions and resources necessary for effective professional practice. Find out about local CEC chapters.
Disability Resources on the Internet
http://www.disabilityresources.org/BRAIN.html
The Disability Resources Monthly (a newsletter reviewing resources for independent living) has compiled this list of websites about brain injury and related subjects.
ERIC Clearing House on Disabilities and Gifted Education
1-800-328-0272 (V/TTY)
http://www.ericec.org
ERIC is an acronym for the Educational Resources Information Center. The ERIC Clearinghouse on Disabilities and Gifted Education (ERIC EC) is one of 16 federally funded clearinghouses in the ERIC system, a nationwide information network sponsored by the U.S. Department of Education, Office of Educational Research and Improvement (OERI), and administered by the National Library of Education (NLE). ERIC EC gathers and disseminates professional literature, information, and resources on the education and development of individuals of all ages who have disabilities and/or who are gifted.
KidSource
http://www.kidsource.com/NICHCY/parenting.disab.all.4.1.html
A guide to readings and resources for parenting children with special needs.
LDOnline
This is a national website dedicated to childhood learning disabilities and ADHD. Provides education, resources, and support for educators, parents, and kids.
National Center for Education in Maternal and Child Health Clearinghouse (NCEMCH)
This site is a federally-supported comprehensive resource center for maternal and child health information, including information on children and youth with special health care needs, youth and mental health, and emergency medical services for children. NCEMCH provides access to data, research findings, consensus reports, and other products. The Web site enables key word searching and contains published bibliographies.
National Information Center for Children and Youth with Disabilities (NICHCY)
Voice/TTY: 1-800-695-0285
http://www.nichcy.org
A very informative website including information on many disabilities and links to other disability resources on the web. For information on TBI, go to publications/ fact sheets/ traumatic brain injury for a concise summary of TBI as it affects children and youth.
National Pediatric Trauma Registry (NPTR)
Voice: 617-636-5031
The National Pediatric Trauma Registry was established in 1985 to study the etiology of pediatric trauma and its consequences.
Solutions: Assistive Technology for People with Hidden Disabilities
http://www.uiowa.edu/infotech/Solutions.htm
This site provides principles and products for supporting people with primarily cognitive difficulties.
Yellow Pages for Kids with Disabilities
http://www.yellowpagesforkids.com/help/states.htm
This site publishes a service directory for disability resources so people can get reliable information and support. It is organized by state.
Links to General Brain/Neurological Info Sites
American Headache Society
http://www.americanheadachesociety.org/
The American Headache Society (AHS) is a professional society of health care providers dedicated to the study and treatment of headache and face pain. Founded in 1959, AHS brings together physicians and other health providers from various fields and specialties to share concepts and developments about headache and related conditions.
Brain Center
Your doorway to information regarding acquired brain injury, including stroke, trauma, anoxia, infection, and tumors.
The Brain Connection
http://www.brainconnection.com
Another fun site with lots of information on brain function as it relates to how we learn. Sign up for the weekly newsletter.
Brain Index
Provides links to other informative sites on the web that pertain to brain injury.
Brain Injury News and Information Blog
http://www.braininjury.blogs.com
Dedicated to providing the latest news on brain injury and is designed to be a valuable resource for professionals, persons who have sustained a brain injury and family members. New developments in medicine, legislation, law, sports, events, meetings and injury prevention are reported on a daily basis.
The Brain Power Project
http://www.thebrainpowerproject.org
Cerebral Cavernous Malformation (CCM) is a type of brain injury. This organization has good resources, information and ongoing research into this type of malformation.
Centre for Neuro Skills
The Centre for Neuro Skills provides a TBI Resource Guide with information on TBI, recovery, and rehabilitation.
Dr. Appel's Neuropsychology Homepage
A Neuropsychology Home Page devoted to the understanding of brain injury, and the neuropsychologist's role in identifying, proving and treating brain injury.
Medical Terminology Web Sites
Check out these sites for dictionaries of medical terms:
http://cancerweb.ncl.ac.uk/omd
http://www.medicinenet.com
http://www.intelihealth.com
http://www.medic8.com
National Institute of Neurological Disorders and Strokes
http://www.ninds.nih.gov/disorders/tbi/tbi.htm
From the "Disorder Quick Links" drop-down menu, click on Traumatic Brain Injury.
Neurology Channel
http://www.neurologychannel.com/tbi/
Neuroscience For Kids
http://faculty.washington.edu/chudler/introb.html
This fun, educational site is maintained by Eric H. Chudler, Ph.D., and has been created for all students and teachers who would like to learn more about the nervous system. Enjoy the activities and experiments on your way to learning more about the brain and spinal cord.
The Neurotrauma Registry
An inclusive national and international resource list for those with acquired brain injury, spinal cord injury, or who have sustained other complex neurotrauma.
Traumatic Brain Injury Info
Basic information about brain injury.
Virtual Hospital - The Human Brain
This site provides virtual brain dissection with photographs of the nervous system. This guide is featured on the Iowa Virtual Hospital site under the link for Common Problems in Adults/Head Trauma. The medical aspects of brain injury and the resulting effects are explained in easy-to-understand language.
The Whole Brain Alliance
http://www.med.harvard.edu/AANLIB/home.html
Websites for TBI Survivors, Families, & Caregivers
The Brain Injury Information NETwork
Online support groups for brain injury, stroke and other medical related issues and for caregivers.
Caregivers
Topic specific newsletters, on line discussion lists, back issue articles of Today's Caregiver magazine and chat rooms.
Caring Road
http://www.caringroad.org/index.cgi
Family Caregiver Alliance
http://www.caregiver.org/caregiver/jsp/home.jsp
Family & Advocates Partnership for Education
The Partnership is a new project which aims to inform and educate families and advocates about the Individuals with Disabilities Education Act of 1997 and promising practices.
Family Village Home Page
http://www.familyvillage.wisc.edu/index.html
A massive site for disability-related information. Any family of a child with special needs should know about this web site. It includes a searchable library of resources related to specific disabilities, bulletin boards, chat rooms, parent support links, and information about adaptive resources.
Family Voices
Family Voices is a national grassroots network of families and others who advocate on behalf of children with special health care needs. Objectives include bringing the family perspective to policy discussions and decisions, and providing a clearinghouse for information and education about ways to assure and improve health care for children. Find links to state Family Voices chapters on this site.
Legacy Health
Caregiver information and support.
National Alliance for Caregiving
Caregiver information and support.
National Association of State Head Injury Administrators
They manage the TBI Technical Assistance Center: http://www.tbitac.org
National Family Caregiver Support Program
http://www.aoa.gov/prof/aoaprog/caregiver/caregiver.asp
National Family Caregivers Association
National Family Caregivers Association
http://www.thefamilycaregiver.org/
Committed to improving the overall quality of life of caregiving families and minimizing the disparities between family caregivers and non-caregivers.
National Organization for Empowering Caregivers
National Respite Services Locator
http://www.respitelocator.org/index.htm
Parent Pals
Click on the "Special Education" link to find information specifically about brain injury.
Resources for Caregivers
http://www.makoa.org/caregiver.htm
The TBI Help Desk for Caregivers
TBI Fact Sheet
http://www.caregiver.org/caregiver/jsp/content_node.jsp?nodeid=1052
The Family Caregiver Alliance works closely with the California Department of Mental Health to coordinate program development, training, research, publications and services for the statewide network of 11 nonprofit Caregiver Resource Centers for families of adults with chronic health conditions.
Traumatic Brain Injury Survival Guide
This website offers a free download of a book written by Dr. Glen Johnson, a Clinical Neuropsychologist..
The Looking Glass
(TLG) is a nationally recognized non-profit agency and first National Resource Center for Parents with Disabilities. They provide direct services, training, materials and research concerning families in which a child, parent or grandparent has a disability or medical issue.
Financial Resources
Ask-A-Nurse
513-569-5400
Provides free health information and physician referrals.
Babies Milk Fund
513-941-2115
Provides pediatric and prenatal care to children and pregnant women.
Bethany House
Phone: 513-557-287 for shelter
http://www.bethanyhouseservices.org
Bethany House Services provides a full range of housing, education and assistance programs to homeless and low-income women and children.
Cincinnati Hamilton County Community Action Agency
http://www.cincy-caa.org/index.asp
CAA provides people with immediate life necessities, offering assistance with rent, mortgage, transportation, utility bills, vision care, food vouchers, and other basic essentials.
Cincinnati-Hamilton County Community Action Agency
1740 Langdon Farm Road
Cincinnati, Ohio 45237
513-569-1840
Cincinnati Health Department
513-357-7200
http://www.cincinnati-oh.gov/health/pages/-5092-/
The Cincinnati Health Department offers five full-service medical clinics which provide services for those in need of home health care, care for children with mental handicaps, testing for lead, school health programs, and units for communicable disease and sanitary conditions.
Cincinnati Metropolitan Housing Authority
513-977-5610
http://www.cintimha.com
The Cincinnati Metropolitan Housing Authority provides affordable housing services to families and seniors through public housing and Section 8 programs.
Cincinnati Works
513-744-9675
http://www.cincinnatiworks.org
Cincinnati Works serves the Greater Cincinnati area by providing for those 18 years and older in need of mentoring free employment services, job search/advancement services, legal services/counseling, transportation and a Chaplain. Cincinnati Works also offers childcare connection.
Consumer Credit Counsel Service
513-366-4504, ext. 15
http://www.cccservices.com
The Consumer Credit Counsel Service offers credit counseling, money management education, credit report reviews and foreclosure prevention counseling. The Consumer Credit Counsel Service serves the Greater Cincinnati area and is open to anyone with income and debt problems.
Duke Energy Program
People Working Cooperatively manages the enrollment and qualification of Duke Energy customers for free home weatherization improvements. To apply, call 513-351-7921.
FreeStore/FoodBank
1250 Tennessee Avenue
Cincinnati, Ohio 45229
513-482-4500
http://www.freestorefoodbank.org/
The FreeStore/FoodBank provides food, products and services to help people overcome barriers to their basic survival needs, and to further their self-reliance.
HeatShare Energy Fund
HeatShare is a Duke Energy-sponsored program administered by The Salvation Army. Eligibility for HeatShare assistance is determined, in part, by household income. For additional information or to apply for assistance, please call The Salvation Army at 513-762-5660.
Home Energy Assistance Program
http://www.odod.state.oh.us/cdd/ocs/heap.htm
With one Energy Assistance Application, you may apply for several federally or state-funded energy assistance programs.
HWAP
The Home Weatherization Assistance Program (HWAP) may provide weatherization assistance year-round for customers who meet the income qualifications.
To obtain an application for either or both programs
- Visit your local Community Action Agency
- Visit Duke Energy ’s Cincinnati office at 644 Linn St
- Call Duke Energy at 800-544-6900 (TDD 800-686-1557)
- Call the HEAP line directly at 800-282-0880
- Call the HWAP line directly at 800-848-1300
Information on Saving Money on Electricity Bills
http://www.xcelenergy.com/Residential/SaveEnergy_Money/Pages/Save_Energy_Money.aspx
Medical Debt Help Web Page
http://www.medicaldebthelp.com/
Neediest Kids of All
513-768-8549
http://www.cincinnati.com/nkoa
Neediest Kids of All provides basic necessities for needy children: hats, coats, shoes, clothing, glasses, educational opportunities, field trips and camp training programs. Funds are available through area schools and the Head Start Program. Neediest Kids of All serves the Cincinnati area including 750 schools in 17 counties.
Ohio Benefit Bank
http://www.governor.ohio.gov/Default.aspx?alias=www.governor.ohio.gov/obb
The Ohio Benefit Bank (OBB) is a web-based computer program to connect low and moderate-income Ohioans with access to work supports such as tax credits and public benefits.
Ohio Department of Job and Family Services
http://jfs.ohio.gov/
ODJFS General Information Customer Service: 877-852-0010
Child Support Customer Inquiry: 800-686-1556
Family Stability Food Stamps: 866-244-0071
Best Rx: 866-923-7879
Ohio Health Plans (Medicaid) Medicaid Consumer Hotline: 800-324-8680
Tax Information for Employers: 614-466-2319 or 1-866-448-2829
Different types of financial assistance are available through some of our many programs including: Child Support, Medicaid, Ohio Works First, Prevention Retention and Contingency (PRC), Unemployment Compensation Benefits and the United Way. Food assistance, cash assistance, employment services, unemployment, child care services.
Ohio Landlord/Tenant Law
http://www.ohiolandlordtenant.com/revised.html
Find out more about property owner and tenant responsibilities, as outlined by the state of Ohio.
People Working Cooperatively, Inc. (PWC)
513-351-7921
http://www.pwchomerepairs.org
People Working Cooperatively, Inc., serves 14 counties in Southwestern Ohio and Northern Kentucky by providing emergency and critical home repairs for qualified low-income homeowners and professional weatherization services for qualified low-income homeowners and renters.
The Society of St. Vincent de Paul Social Services
513-421-0602
www.svdpcincinnati.org
The Society of St. Vincent de Paul Social Services provides those in need with medication assistance, clothing, household items, furniture, rental and utilities assistance, a food pantry for West End residents, and referrals to other social service programs.
State-by-State Guide to Medical Dept Help
http://www.ahirc.org/helpwithmedicalbills.html
The SuperJobs Center
513-731-9800
http://www.superjobs.com/
The Super Jobs Center provides direction and oversight to jobseekers at no cost by working to improve the overall business climate to ensure economic growth. Services include: hiring events, training, job matches, pre-screening and jobseeker workshops. Super Jobs Center has three locations: Downtown, Springdale and Bond Hill.
Supports to Encourage Low-income Families (SELF)
1790 A & B South Erie Hwy
P.O. Box 1322
Hamilton, Ohio 45012
Phone: 513-868-9300
Fax: 513-737-3889
www.selfhelps.org
Butler County's community action agency offers crisis assistance, education-based services, job services, information and referrals.
United Way 211
The service is free, confidential and available to all residents in Hamilton, Brown and Clermont counties in Ohio, and Boone, Campbell, Grant and Kenton counties in Kentucky. Service not yet available on all cellular phones. Call 513-721-7900. For connection to community services, call United Way 211. For emergency services, call 911.